So it feels like I am constantly feeding David. Like I am constantly trying to stuff him full of things. I am starting to worry all this is going to back fire and he will start hating eating. Today he has barely ate anything. For his aide at school he ate 10 cheerios and 2 danimal yogurts. I brought him home to eat before speech therapy, and he tried to throw up when he ate half a banana. There is nothing in his belly to throw up. There is no fever. He seems okay now that he gagged a bit. He was suppose to have a tube feeding about 20 minutes ago but I am too worried it will cause another gagging episode. So I am giving him a little while before I try to give him a tube feeding. I feel like screaming! I even made him Sponge bob macaroni and he wouldn't eat it.
I canceled therapy since I am pretty sure he will gag all over the place when they try to eat something. Hopefully it is just his cold and it will pass.
Hi,
ReplyDeleteI wondered if you had heard of the Oley Foundation. We offer free information and peer support to families like yours with a member on home tube or IV feeding.
Check out our web site at www.oley.org. For a good overview, click on the "New to Oley" button.
We have some information on "Weaning from Tube Feeding" that might be helpful for you, posted at:
http://www.oley.org/tubetalks.html
You'll need to scroll down to the bottom of the page.
Feel free to call/email me if you have any questions or would like to meet another family in a similar situation.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY